March is Multiple System Atrophy Awareness Month
March is designated as Multiple System Atrophy Awareness Month and provides the opportunity to educate the world about this rare and fatal neurodegenerative disorder. By raising awareness of MSA, we can help improve early diagnosis, encourage policymakers to increase access to services and fund research into MSA, as well as reduce the feelings of isolation faced by patients and caregivers.
During Multiple System Atrophy Awareness Month, we’ll share many opportunities for you to Shine a Light on MSA. MSA Coalition will provide suggestions on ways to share your story, tell more people about MSA, and learn from other people in the MSA community.
#MSAAwarenessMonth #ShineALight
Get Involved in MSA Awareness Month!
Help spread awareness by showing support and getting involved with the MSA Community and the MSA Coalition in the following ways:
Participate in our Community Action Opportunities
Week One: Advocacy & Awareness
- Take part in the Letter Campaign Challenge for the National Plan to End Parkinson’s Act that kicks off on Monday, March 4th.
- Register and attend accessibleGO’s Information & Demo Session hosted virtually on MSA Connect on Wednesday, March 6th at 12:00pm EST.
Week Two: Education
- Join us for a Fitness Class with Movement Revolution hosted virtually on Wednesday, March 13th at 12:00pm EST.
- Test Your Knowledge with MSA Coalition Staff Live Kahoot on Friday, March 15th at 12:00pm EST.
Week Three: Support & Community
- Sit in on our Patient Panel and Live Q&A on Monday, March 18th at 12:00pm EST.
- Participate in our MSA Myths vs. Facts challenge on MSA Connect beginning on Monday, March 18th and running through Friday, March 22nd.
Week Four: Research
- Check out our Clinical Trial Round Up on Wednesday, March 27th at 12:00pm EST.
- Support our cause and enter our raffle for a chance to win a sweatshirt and mug! Donate $15.24 for one entry, $25.24 for two, or $103.24 for twelve entries by the end of the day on March 31st.
- Spread awareness by sending a pre-written letter to local newspaper editors to be disseminated to numerous local publications.
Make a Contribution or Start a Fundraiser
Make the most of MSA Awareness Month by making a contribution or make an impact by starting a fundraiser to urge your circle to join in our mission.
Leave a Review
Help MSA Coalition get recognized as a Top Nonprofit in 2024 by leaving a review on our organization’s profile page.
For the past 8 consecutive years, MSA Coalition has been acknowledged as a Top-Rated Nonprofit by GreatNonprofits.org.
Great Nonprofits is the leading platform for community-sourced stories about nonprofits, and by sharing your story and photos along with how the MSA Coalition has supported you, we can continue to reach new community members and heighten our impact on MSA awareness.
Connect with us on Social Media to Stay in the Loop!
Spread Awareness on Your Social Media
You can draft and share your own messages this month. Here are some resources you can use to accompany your posts if you’d like to utilize them:
About the Multiple System Atrophy Coalition
Our Mission
Multiple System Atrophy is a rare condition of the nervous system that causes gradual damage to nerve cells in the brain. From our beginnings, the MSA Coalition has been devoted to improving quality of life and building hope for people affected by multiple system atrophy and their families, friends, and caregivers through:
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- Providing patients and care partners with trusted and compassionate emotional support.
- Educating patients, care partners, and healthcare professionals with credible, critically important, and relevant information.
- Building a sense of community by connecting and unifying people affected by MSA.
- Funding patient-centric collaborative research aimed at alleviating symptoms, slowing disease progression, and discovering a cure.
- Playing a leading role in raising awareness and advocating for those impacted by the disease.
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Our Vision
Improve quality of life for the multiple system atrophy community by expanding access to care and support while advancing research toward treatment.
Want to learn the language of MSA? Here’s a useful glossary of associated MSA terms.