Below is a guest blog post from a caregiver dealing with mesothelioma – Cameron Von St. James.  While the disease it very different from multiple system atrophy, caregivers of people with different diseases can learn from each other. The Day I Became Her Caregiver November 21, 2005.  It’s a day that is forever etched into… Continue reading

The National MSA Support Group supports and participates in the Autonomic Disorders Consortium (ADC).  The ADC was established in August 2009 as a Rare Disorders Clinical Research Consortium (RDCRC).  The consortium is made up of physicians specializing in autonomic disorders, scientists, nurses, patients and support groups.  The Autonomic Disorder Consortium is solely focused on finding… Continue reading