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The MSA Blog

The Multiple System Atrophy Coalition’s official blog. Find posts on MSA tips, caregiving, patient experience, fundraising, research updates, and more.

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The Not So Little Things

By Jimmy Burt and Kathleen Romania Can you feel joy and sadness at the same time? It seems like, nowadays, every Christmas season I experience this duality of emotions. I think my wife and her family do too. And I’d imagine George, my father-in-law, does especially....

You Can Go Home Again — with Preparation

By Alan J. Smally MSA Coalition Board of Directors Patient Representative Thomas Wolfe wrote “You Can’t Go Home Again,” but I thought maybe I could for Christmas. Although I was born up north, I had my first birthday in Sarasota, Florida, and lived there all through...

Christmas and MSA

By Tom Tait Is this the last Christmas? How do you get through Christmas with your loved one who was just diagnosed with possible MSA. The question always on your mind is, "Will this be the last one?" That question will come and go along the MSA journey during many...

Saying Yes to Opportunities

By Christine Kozikas My story started in 2015 when I fell at the counter of the news agency I worked in, and a co-worker humiliated me by sharing security camera footage with every sales rep that came into the store. Little did I or they know that what appeared to be...

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