Building Hope For People Affected By
Multiple System Atrophy
The Multiple System Atrophy (MSA) Coalition is a 501(c)(3) charitable organization with a 30-year history of devotion to improving the quality of life and building hope for people living with MSA.
The Four Pillars Of Our Mission
Credible & Relevant Education
Educating patients, care-partners and healthcare professionals with credible, critically important and relevant information
Trusted Emotional Support
Providing patients and caregivers with trusted and compassionate emotional support
Building A Unified MSA Community
Building a sense of community by connecting and unifying people affected by MSA.
Funding Patient-Centric MSA Research
Funding patient-centric collaborative research aimed at alleviating symptoms, slowing disease progression and discovering a cure
MEET ALAN & ROCIO
We exist to support people like Alan and Rocio. Watch their story of how MSA connected them to others and how they’re planning on paying it forward. Then visit our YouTube channel for more inspiration and information.
Testimonials About Our Work
Kara Byron – Daughter of an MSA Patient
“My dad, Marc, was diagnosed with MSA-C in 2015. At the time, my family essentially knew nothing about this rare disease and we needed to better understand his diagnosis. When we learned that there is no curative treatment for MSA, we committed our time to understanding his symptoms, collaborating with doctors and finding ways to improve my dad’s quality of life.
Over the last four years, we’ve established the best symptom management care plan for my dad, of which we completely attribute to the MSA Coalition.
As a soon-to-be graduate with a Masters in Social Work, I see first-hand the efficiency and dedication of the MSA Coalition in providing MSA patients, families and caregivers with the most optimal resources, research, support and education.
When you really pause to consider how rare and complex this disease is, it feels reassuring and comforting to know that the coalition is wholeheartedly focused on helping those affected by MSA navigate this journey. Each conference, webinar, support group and fundraising effort is thoroughly thought through and the information and wealth of knowledge the coalition shares with the community is unparalleled.
For my dad and our family, the MSA Coalition also provides guidance on all things MSA-related, from the most durable medical equipment to recommendations for specific therapies. The sense of hope and abundance of resources our family has received from the coalition has completely changed our lives. I encourage anyone impacted by MSA to become involved with this wonderful organization because the MSA Coalition will change your life, too!”