Support Hotline: (866) 737-5999 info@multiplesystematrophy.org

This year the MSA Support Group marked World MSA Day by going to Capital Hill in Washington, DC to advocate for MSA patients and caregivers. Moving forwardf, every October 3rd will be World MSA Day and the action to take is to walk one mile and then light a candle. The Support Group had two Board Members (Don Crouse and Judy Biedenharn – pictured) and several patients and caregivers met with many Congressional and Senatorial staffers to discuss MSA and also neurogenic orthostatic hypotension, one of the hallmark characteristics of MSA.

We hope we made a difference! At a minimum we know we walked a mile and more to do our share for World MSA Day activity!

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