By Cathy Chapman, Patient Representative, the MSA Coalition
Multiple system atrophy. As a patient, hearing these words brings out a flood of emotions – some of which include fear and overwhelming loneliness for what is ahead. I’d like to share with you lessons I have learned from others on this journey that have guided me since my diagnosis with MSA-C in 2012.
- Learn everything you can about MSA to be able to face it head on.
- Exercise safely, to your ability, for as long as you can.
- Surround yourself with the love of family and friends.
And always…
- Take one day at a time.
My name is Angele, I am a nurse and I was Initially diagnosed with parkinson
In 2015
Recently diagnosed with MSA.
I have never been so confused
Lack of information
Hi Angele,
We encourage you to call our support line to speak to a volunteer who can help answer your questions. 1-866-737-5999
You can also download and read our document “MSA What you need to know” http://www.multiplesystematrophy.org/about-msa
Best regards,
Pam
pbower@msacoalition.org
My wife was diagnosed with MSA six years ago. It does become a difficult life for both patient and caregiver. Do the best you can to fight the disease, but we have found some peace by accepting it as a different way of life. Every human has problems in life, and we have accepted this as ours. It has also given us opportunity to reflect on what is truly important in this life on earth. I pray that going forward you have loving people helping you travel this difficult path.