I wrote a review for the MSA Coalition today on the Greatnonprofits website as a volunteer. This made me want to send a short note to say hello. Even though I knew the day would come that my mother would no longer be living with me on earth, you never know what to expect. How you will really feel. We just celebrated her 63rd birthday yesterday, the first BIG “first” of the year. Tough. Thank you again for the flower bouquet for my mom’s memorial service too.

Anyhow – I just wanted to say once again how much I appreciate the Coalition and each and every one of you. Life is funny though. It’s odd to say how glad I am that this Coalition exists and that I can call you friends…because I also wish with every bone in my body that the letters MSA meant nothing to me. That my family was still going about our own lives. But…this is the reality. And I choose instead look at the situation as…thank goodness the Coalition is around to provide immense and incredibly important support, advice, funding, etc. I can’t imagine what our lives would have been like if my family had to suffer through mom’s diganosis without this community. That would have been a different level of hell.

Thank you for all the support through my various fundraising events and projects. I am indeed riding the STP again this year (the big Seattle to Portland bike ride) and I will be doing it with two of my mother’s dear friends. I’ll be raising money and eager to keep in the fight. I am really hoping to make it to Vancouver in June to represent the Coalition with Pam too.

And lastly, thank you Don for helping put together that beautiful video of my mom, dad, and myself. I’ve probably watched the video 30 times. Thank you for the chance to hear my mom speak again.

Love and hugs to you all. Maybe see you at the 2017 conference. Let me know if I can help.

Erin Knutson Williams

Please watch this beautiful story about Debbie Knutson and how she impacted the life of her personal trainer while she was in the midst of her fight against MSA.