In a normal cycle of elections, Dr. Roemer was elected to replace Judy Biedenharn who retired after more than a decade of service to the MSA Coalition and community.  Ms Biedenharn continues to serve in a less active role as Board Member Emeritus. April 5, 2017, Charlotte, NC: The Multiple System Atrophy Coalition has elected… Continue reading


Global efforts to achieve a greater understanding of multiple system atrophy, a rare and devastating neurodegenerative disease, have been enhanced by ten research projects receiving awards in 2016. The MSA Coalition Research Grant Program began awarding funds in 2014 and has now funded a total of 27 research projects around the world. Charlotte, NC –… Continue reading


Every March is Multiple System Atrophy Awareness Month and represents the ideal opportunity for the MSA community to unite in creating awareness for this rare and fatal neurodegenerative disorder. Charlotte, N.C. – March 1, 2016: The Multiple System Atrophy (MSA) Coalition today announced the kickoff of Multiple System Atrophy (MSA) Awareness Month. In 2010, March… Continue reading


An eventful year of building awareness for MSA has led to fundraising success Charlotte, N.C. – December 24, 2015: The Multiple System Atrophy (MSA) Coalition today announced it is currently in third place in the CrowdRise Holiday Challenge, a fundraising contest with hundreds of 501c3 organizations participating. Fueled by generous volunteers and year-long awareness efforts… Continue reading


Program addresses the things MSA can’t take from those affected and drives awareness for importance of donations  Charlotte, N.C. – December 1, 2015: The Multiple System Atrophy Coalition has announced the launch of its MSA Can’t Take campaign to drive awareness and funds for Multiple System Atrophy (MSA) research, timed today to coincide with Giving… Continue reading


Greater collaboration and financial growth give hope of a research breakthrough for multiple system atrophy, a devastating and rare neurodegenerative disease. Charlotte, NC – October 1, 2015:  The Multiple System Atrophy Coalition has announced its latest round of funding for researchers pursuing a cure for the devastating neurodegenerative disorder multiple system atrophy (MSA). Ten grants… Continue reading


Seattle, WA – September 16, 2015: The Multiple System Atrophy Coalition invites MSA patients, their families and interested healthcare professionals to attend the MSA Coalition 2015 Annual Patient and Family Conference to be held Oct. 2-3 at the Airport Seattle Marriott in Seattle, Wash. Beginning on Friday, Oct. 2 at 1 p.m. PT and running… Continue reading


Attaining the GuideStar Gold Level profile demonstrates the MSA Coalition’s commitment to transparency as it continues its mission toward finding a cure for MSA. Charlotte, NC – The Multiple System Atrophy Coalition has achieved the Gold GuideStar Nonprofit Profile level. GuideStar is the world’s largest source of information about nonprofit organizations and a leader in advancing transparency in… Continue reading


The CrowdRise Holiday Challenge provides nonprofits the opportunity to boost year-end donations, while also competing for great prizes.   The MSA Coalition is participating in the event for the second consecutive year and has committed to placing 100% of the money raised during the challenge into its MSA Research Fund. The Multiple System Atrophy Coalition has… Continue reading


In his new role, Philip plans to use his position on the Board to advance MSA awareness, educate health professionals and collaborate with other charities to make government funding available to MSA patients. Philip is already well known in the MSA community for his tireless campaign with Tim’s MSA Shoe, an iconic symbol of Multiple… Continue reading


In her new role, Cyndi is poised to advance her goals of increased education, awareness, and fundraising for Multiple System Atrophy. With her doctorate in mathematics education from Columbia and experience in running her own non-profit, Cyndi is a stellar addition to the Coalition team. The Multiple System Atrophy Coalition, a growing nonprofit 501(c) 3… Continue reading


Tom Looney, diagnosed with MSA in 2008, worked closely with tech industry icons, including Steve Jobs. His unique experiences and talents will now be utilized to represent patients and increase awareness for this rare and terminal neurological disorder. The Multiple System Atrophy (MSA) Coalition, an organization dedicated to serving patients, caregivers and families touched by… Continue reading


In her new role, Sharon will focus on advocating for and supporting MSA families as well as on educating healthcare professionals unfamiliar with this rare neurological disorder. The Multiple System Atrophy Coalition, a growing nonprofit 501 (c) 3 organization dedicated to serving patients, caregivers and families affected by the neurological disorder Multiple System Atrophy (MSA),… Continue reading


In his new role, Dr. Kellerman will be representing the needs of current caregivers as well as focusing on educating healthcare professionals unfamiliar with this rare neurological disorder. The Multiple System Atrophy Coalition, a growing nonprofit 501(c) 3 organization dedicated to serving patients, caregivers and families affected by the neurological disorder Multiple System Atrophy (MSA),… Continue reading


The MSA Coalition is poised to continue its strong growth as a national nonprofit focused on education, support, advocacy, and research grant funding as it pursues its primary mission of finding a cure for Multiple System Atrophy. The Multiple System Atrophy Coalition, a growing nonprofit 501 (c) 3 organization has announced the appointment of five… Continue reading


The ‘Make Their Mark’ MSA Awareness Tour salutes Mark Versel, who died from Multiple System Atrophy, a rare and terminal neurodegenerative disease. Two cyclists begin their ride of more than 850 miles today, the 4th of July, to raise awareness of multiple system atrophy (MSA), a rare and terminal neurological disease that took the life… Continue reading


New officers focused on uniting the multiple system atrophy community to defeat the rare and terminal, neurodegenerative disorder. Expansion of the Board of Directors will be announced soon as important work continues. The Multiple System Atrophy Coalition has elected new officers of its board of directors during their annual general meeting. Incorporated in 1999, The… Continue reading


Riders will ‘Make Their Mark’ to salute their father and brother, who died from Multiple System Atrophy, a rare and terminal neurodegenerative disease. Two cyclists will ride more than 850 miles this summer to raise awareness of multiple system atrophy (MSA), a rare neurological disease that took the life of a loved one. Neil Versel… Continue reading



As part of its $219,000 initial multiple system atrophy research grant funding round, The MSA Coalition® has awarded $25,00 to Dr. Roy Freeman of Beth Israel Deaconess Medical Center for research to determine whether alpha-synuclein deposits are a valid biomarker for multiple system atrophy. The Multiple System Atrophy Coalition has awarded a $25,000 grant to… Continue reading


Eduardo Benarroch, M.D. of the Mayo Clinic in Rochester, MN. Has been awarded a research grant for his project “Mechanisms of Excessive Daytime Sleepiness and Sleep Related Respiratory Dysfunction in MSA.” In January 2014, The MSA Coalition announced the funding of five MSA research grants for a total of $219,000. The Multiple System Atrophy Coalition… Continue reading


The MSA Coalition announced in January 2014 the funding of five MSA research grants for a total of $219,000 including the project “Peripheral delivery of brain-targeted neurosin as a novel treatment for MSA”. This pre-clinical proof-of-concept study in mice is being led by Eliezer Masliah, M.D. (University of California San Diego). The Multiple System Atrophy… Continue reading


The MSA Coalition® announced in January 2014 the funding of five MSA research grants for a total of $219,000 including the “Global MSA Registry & Study Group.” The project is being led by researchers from Austria and the USA and will facilitate future international MSA trial recruitment and promote sharing of anonymous patient information to… Continue reading


The MSA Coalition announced in   January 2014 the funding of five MSA research grants for a total of   $219,000 including the project “Stem cell-based Therapeutics Platform   for MSA.”  The project is being led by Vikram Khurana, M.D, Ph.D.   (Massachusetts General Hospital) and could lead to genomics and small   molecule discovery… Continue reading


Rock stars, celebrity chefs, and rare disease advocates band together to FIGHT MSA, a rare and fatal neurodegenerative disorder. The Multiple System Atrophy Coalition and other MSA groups will be in attendance in a show of solidarity in support of “rock ‘n roll chef” Kerry Simon. A masterful list of superstars comes together for a… Continue reading