Board of Directors

Cyndi Roemer

Chairman, Board of Directors

CynthiaCynthia was primary caregiver to her mother, Dolores, who was diagnosed with MSA in 2004. Dolores remained at home throughout her illness and lost her battle to MSA on Mother’s Day, 2009. With her siblings, Cynthia founded MSA NJ, a registered non-profit to support those in the tri-state area impacted by MSA. Though young, MSA NJ has already hosted several events and assisted in bringing the Coalition conference to New Jersey in 2012, one of the larger sessions to date.“If I can make a difference for others traveling down this path, then my mother’s suffering will not have been in vain. Mom helped people all her life. I have no doubt she is leading me now to continue her legacy.”

Appointed to the Board in 2014, Cynthia hopes to expand education and patient support, and to increase professional awareness and fundraising initiatives in an effort to bring MSA needs to the global forefront.

Cynthia completed her doctoral degree at Columbia University. She is a senior professor of mathematics and department chairperson at Union County College. During her tenure at the College, she has been a proponent of service-learning, coordinated various programs, planned numerous events, and founded the College’s Student Volunteer Organization. Cynthia is close with her siblings, Kym and Ron, and is mommy to four fur babies, enjoying the unconditional love and loyalty of her dogs.

Don Crouse

Vice Chairman, Board of Directors

Don-CrouseDon is a founding member of the MSA Coalition (formerly known as the Shy-Drager MSA Support Group). He joined the Board of Directors in 1998. Don became connected to multiple system atrophy through his career in the pharmaceutical industry. Don served as the ProAmatine (midodrine) Product Manager at Roberts Pharmaceuticals (now Shire), as well as the National Brand Director at Chelsea Therapeutics, where he worked on gaining approval for Northera (droxidopa). Both products are approved in the US for the treatment of neurogenic orthostatic hypotension, a condition that affects approximately 80% of MSA patients. Through his contact with people affected by multiple system atrophy, Don has a strong desire to see the MSA Coalition reach its mission of finding a cure. Don volunteers his business skills to the MSA community to help build and manage a world-class charitable organization: obtaining 501©3 status, advocating on Capitol Hill, receiving certification from non-profit watchdogs such as Guide Star, establishing a dedicated MSA research fund, research grant program and scientific advisory board. Don also maintains the MSA Coalition website.

Don lives in Charlotte, NC with his wife Geri (also a dedicated volunteer for The MSA Coalition) and two daughters. Don also suffers from a rare disease known as white spot syndrome, which affects his retina and has caused a substantial decrease in his central vision.

Carol Langer

Treasurer, Board of Directors

Carol-LangerCarol was a caregiver for her husband Rob, who was diagnosed with Multiple System Atrophy in 1998 and died in 2009. She has been an active participant in both on-line and in-person support groups for MSA since shortly after her husband became ill, and currently moderate a monthly webinar for caregivers of people with MSA.Professionally, Carol is a retired financial executive with more than 30 years of experience in management of technology companies. Carol currently serves as a Director of Edmund Optics, Inc., a multi-national manufacturer of precision optical components, as a Trustee of the Huntington Theatre Company in Boston, and as Chair of the Neuroscience Advisory Committee at Beth Israel Deaconess Medical Center in Boston. She has a B.A. from Boston University in English Language and Literature and an M.S. from Northeastern University in Accounting.

Carol joined the Board of Directors in 2013.

Pam Bower

Secretary, Board of Directors

Pam-BowerPam had a family member affected by Multiple System Atrophy and began seeking information on the disease in 1994, finding very limited sources available at that time. Connecting with others through the internet she began sharing information and became involved in leading on-line support groups for Cerebellar Ataxia and MSA.In 2010, Pam created the website to highlight the best sources of information on the disease from around the world. Pam maintains an active presence on social media, sharing information and keeping up to date on the latest MSA research news. Her key goals are to encourage worldwide collaboration among the MSA community, promote more awareness, encourage fundraising and support researchers to find a cure.

Professionally, Pam is currently a Senior Consultant for an IT service company and has worked for clients in the Telecommunications, Insurance and Utility sectors. After earning a Bachelor of Science degree in Computer Science from the University of New Brunswick, she began her career with Maritime Life Assurance Company in Halifax, Nova Scotia, a subsidiary of John Hancock, Boston, MA. While there she obtained her Fellow, Life Management Institute, a life insurance and financial services industry management designation offered by LOMA in Atlanta GA. Pam joined the Board of Directors in 2013.

Larry Kellerman

Member, Board of Directors

LarryLarry is the proud husband of Mary Colleen, a multiple system atrophy Type C (Cerebellar) patient. The journey to this diagnosis took over five years, five different physicians/specialists and multiple diagnoses. As the caregiver he became an integral part of that journey and brings that experience to the caregiver representative position. Caregiving has many aspects, among them ensuring the patient has the best opportunity daily for a good quality of life, informing doctors about the disease prior to a visit and advocating for the disease among those who do not know about it. Larry came to Facebook late, following the national MSA conference in September 2013, and has established the MSA Awareness community page to share personal anecdotes, information and questions that arise in a typical day.With his advanced degree in Science Education and thirty years of teaching and learning at all levels, from 2nd grade to graduate school, Larry is ready to join all who are dedicated to defeating this disease. Educating caregivers, doctors and health professionals about the disease, fundraising, raising awareness and ensuring the development and use of the patient registry are among his goals. Larry joined the Board of Directors in 2014.

Steve Klisares

Member, Board of Directors

Neil Versel

Member, Board of Directors

Hadley Ferguson

Patient Representative, Board of Directors

Dr. David Robertson, MD

Physician Advisor, Board of Directors

David-RobertsonDr. Robertson is a Professor of Neurology, Vanderbilt University Medical Center. He is a clinical researcher specializing in autonomic disorders. He treats patients with MSA from all over the world and provides these patients with compassion and honesty. Dr. Robertson’s main responsibility as a Board member is to serve as a Physician Advocate and advisor to the Board while also making other physicians aware of the services of the MSA Coalition. Dr. Robertson is a founding member of the MSA Coalition (formerly known as the Shy-Drager MSA Support Group). He joined the Board of Directors in 1999.

Dr. Thomas Chelimsky, MD

Physician Advisor, Board of Directors
Thomas-ChelimskyDr. Chelimsky is a Professor and Chair of Neurology at the Medical College of Wisconsin and is the current President of the American Autonomic Society. He sees multiple system atrophy patients in his clinic practice. His main responsibility as a Board Member is to serve as a Physician Advocate and advisor to the Board while also making other physicians aware of the services of the MSA Coalition. Dr. Chelimsky joined the Board of Directors in 2001.

Judy Biedenharn

Board Member – Emeritus

Judy-BiedenharnJudy was caregiver to her husband Ned after he was diagnosed with Multiple System Atrophy in 1991, until his death in 2003. While Ned was living, Judy held support group meetings in their home. After Ned’s death, Judy attended her first patient/caregiver support group meeting sponsored by the MSA Coalition as it was held in Ohio that year.She has attended the last 10 conferences, and continues to meet with patients and their families in Ohio and surrounding areas whenever possible. Judy also answers the toll-free support hot line (1-866-737-5999).

Professionally, Judy is a Registered Nurse (retired) with a nursing degree from Mount Carmel School of Nursing in Columbus, Ohio, and a Bachelor of Science degree from The College of Mount Saint Joseph in Cincinnati, Ohio, with an emphasis on the Management of Nursing Services. After working in Surgical Oncology and Emergency Departments for a few years, the majority of her professional career was spent managing health services in the field of Correctional Health Care.

Judy joined the Board in 2008 where she continues to support and promote the pillars of the MSA Coalition:

Support * Education * Research * Advocacy