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MSA Awareness Month Events 2022


Multiple System Atrophy Patient Panel

Wednesday, March 9
12-1 pm ET

Moderator: Larry Kellerman, Ph.D. and Board Member for The MSA Coalition
Panelists:
Cathy Chapman, MSA Coalition Patient Representative, Jim Davis, and Isabelle Cote

The MSA journey presents problems that most have not encountered before. Oftentimes other MSA patients have encountered similar problems or concerns. Join our MSA patient panel as they share some of their experiences and answer questions from attendees.

Driven to Help | Virtual Documentary Premiere Screening

Friday, March 11
7:30-9:30 pm ET

You are invited to the premiere film screening of Driven to Help, a 55-minute documentary featuring the story of Milford resident Austin Crawford and his ongoing battle with Multiple System Atrophy. The screening will be livestreamed on Facebook and on the Center Street Productions website.

Movement Disorder Society (MDS) Criteria for the Diagnosis of MSA

Tuesday, March 15
10-11 am ET

Co-Presenters:
Professor Gregor Wenning, Medical University Innsbruck, Austria
Professor Iva Stankovic, University of Belgrade, Serbia

Last month, ERN-RND featured Professors Gregor Wenning and Iva Stankovic in a webinar on “MDS Criteria for Diagnosis of MSA.” This webinar was geared toward medical and research professionals initially, but this month, they are presenting the information again in a more accessible way to patients and family members to understand. The presentation will contain two parts: 1. A critique of the second consensus criteria for diagnosis of MSA to be presented by Iva Stankovic and 2. The MDS criteria for the diagnosis of MSA to be presented by Gregor Wenning.

Due to the use of sensitive patient information during the webinar, a recording is not available.

Live Q&A on Multiple System Atrophy

Thursday, March 24
3-4 pm ET

Facilitator: Dr. Vikram Khurana, Harvard Medical School

If you’re not a medical professional, it can be difficult to understand MSA and related research. Now’s your chance to ask a medical professional your questions and get clarification on any concepts that you may not understand. There will be time to ask questions during the session, but we recommend you submit your questions beforehand.