The MSA Blog

The Multiple System Atrophy Coalition’s official blog. Find posts on MSA tips, caregiving, patient experience, fundraising, research updates, and more. 

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Thankful for Another Day to Fight

Thankful for Another Day to Fight

By Betty Martin My name is Betty Martin. I have lived with my husband, Jerry Martin - for nearly fifty or sixty years now - in Lynnville, Tennessee. I had Parkinson’s Disease, but then I was faced with Multiple System Atrophy (MSA). I’ve had it now for about ten...

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Memories, Advice and Virtual Hugs from Judy

Memories, Advice and Virtual Hugs from Judy

By Judy H. Biedenharn, RN, BS As people get older, they retire from their careers, often downsize their homes and, in general, tend to slow down their activities. I checked off the retirement item over ten years ago and am now working on the other two! To help...

Patient Perspective: Living With MSA

Patient Perspective: Living With MSA

By Sharron Mills Amy was the MSA Coalition’s 20,000th Facebook fan! When we reached out to her to thank her for helping us reach this milestone, she sent us her warm greetings from Australia and told us about her friend Sharron, who has MSA. Amy helped Sharron write...

The Importance of Hydration

The Importance of Hydration

By Cathy Chapman, Patient Representative, the MSA Coalition Staying hydrated is particularly important for MSA patients because of the autonomic dysfunction with temperature intolerance and orthostatic hypotension. Here are some helpful guidelines for adequate...

Informal Poll Shows Toll of MSA on Patients

Informal Poll Shows Toll of MSA on Patients

We conducted a poll on the Patients Journey Facebook Group page, and over 250 MSA patients participated. The question posed was: “MSA ravages our bodies but it also takes a huge toll on our mental health. What loss from MSA do you or have you feared most?” While this...

Remembering the “Partner” in Care Partner

Remembering the “Partner” in Care Partner

By Elaine Douglas, The MSA Coalition Board of Directors So much to do. So much our loved one can’t do. We now do the cooking, the shopping, the planning, communicating with family and friends. And pretty soon, we’re doing it all. We’ve forgotten that we’re a “partner”...

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