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The MSA Blog

The Multiple System Atrophy Coalition’s official blog. Find posts on MSA tips, caregiving, patient experience, fundraising, research updates, and more. 

Read Our Latest Blog Posts

The Loving Sacrifice of Caregiving

By Deborah Park Hello, my name is Deborah and I'm a 25-year-old daughter whose mother lost her fight to Multiple System Atrophy on September 11, 2021. My story of caregiving began in 2018 when my mom was diagnosed with MSA-C. As a sophomore in college, I was...

Learning to Navigate Life Changes

By Wendy McCullough April 27th, 2023 marked 25 years since my husband, Jason, and I said, "I do." We vowed to love and care for each other through all of life's changes, and yet, when you are in your mid-twenties, you do not know exactly what that will mean. Life's...

You Walk Away? | A Poem from an MSA Patient

By Teresa Baker I write a great deal of poetry in order to express feelings, ideas, and opinions which come from someplace deep inside which cannot be easily explained; but I also think and express myself using abstract ideas which come through better using poetry. I...

MSA Instruction Manual

By Amy Davis When my husband was diagnosed with MSA-P in 2017 and after the shock of what we would be dealing with, I immediately wished for an MSA instruction manual. Through all the numerous doctors’ appointments, nothing prepared me for the frightening symptoms my...

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