By Teresa Baker I write a great deal of poetry in order to express feelings, ideas, and opinions which come from someplace deep inside which cannot be easily explained; but I also think and express myself using abstract ideas which come through better using poetry. I...

Hello, my name is Teresa Scruggs-Dyer, and I want to share some of my experiences with Multiple System Atrophy (MSA). There are 2 types of Multiple System Atrophy, MSA-P (parkinsonian) and MSA-C (cerebellar). In July 2021, I was diagnosed with MSA-P. In early 2018, I...

By Amy Davis When my husband was diagnosed with MSA-P in 2017 and after the shock of what we would be dealing with, I immediately wished for an MSA instruction manual. Through all the numerous doctors’ appointments, nothing prepared me for the frightening symptoms my...

By Kathleen Shada First, I want to gratefully acknowledge my privilege. Thanks to my parents and family, I‘ve never wanted for anything. Also, I’ve been very lucky to have caring friends who have supported me in various ways during this journey. My MSA journey started...

By Julianna Eley “Do you want to give Nugget a treat?” “No.” These days, no usually means yes but I waited for her to clarify. “YES! Yes. Yes.” I tucked the treat into my mother’s right hand. Her grip strength was almost non-existent, her left hand had never properly...