The MSA Blog
The Multiple System Atrophy Coalition’s official blog. Find posts on MSA tips, caregiving, patient experience, fundraising, research updates, and more.
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The Lessons MSA has Taught Me
By Kathleen Shada First, I want to gratefully acknowledge my privilege. Thanks to my parents and family, I‘ve never wanted for anything. Also, I’ve been very lucky to have caring friends who have supported me in various ways during this journey. My MSA journey started...
Books, Treats, and Bingo: A Day with my Mother with MSA
By Julianna Eley “Do you want to give Nugget a treat?” “No.” These days, no usually means yes but I waited for her to clarify. “YES! Yes. Yes.” I tucked the treat into my mother’s right hand. Her grip strength was almost non-existent, her left hand had never properly...
Miles for MSA Year 4: Updates from Austin Urban
At the MSA Coalition, we are privileged to have a dedicated community of fundraisers and supporters that do whatever they can to help us continue our work and improve the lives of patients diagnosed with Multiple System Atrophy (MSA). This May, we cheered on Austin...
Making Adjustments for MSA
By Alan J. Smally, Patient Representative of the MSA Coalition MSA is a multifaceted disease that presents differently in each person. There are similarities and differences in how the varied issues respond to interventions. In this blog post, I discuss issues that I...
MSA Coalition receives $25K from San Manuel Gaming and Hospitality Authority
By Elizabeth Turcza, MSA Coalition Director of Development Over a month ago, I was connected to the San Manuel Gaming and Hospitality Authority, a governmental instrumentality of the San Manuel Band of Mission Indians, through Chef Luke Palladino, a friend of Chef...
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