The MSA Blog
The Multiple System Atrophy Coalition’s official blog. Find posts on MSA tips, caregiving, patient experience, fundraising, research updates, and more.
Read Our Latest Blog Posts
Navigating Clinical Trial Participation as a Care Partner for Your MSA Patient
By: William Underwood, MSA Coalition General Advisory Council There are many frustrations that come with being a care partner for an MSA patient, but the biggest one for me is how difficult it is to find compatible trials to enroll in. I am the care partner for my...
What Has Helped Through a Non-Linear MSA Case
By: Belinda Franklin There are three typical stages of Multiple System Atrophy (MSA) – Premotor (sexual and urinary dysfunction, sleep disorder, orthostatic hypotension), Possible (Parkinsonian, cerebellar features), and Probable (multidomain autonomic failure,...
Now Her Fight is My Fight | MSA Awareness Month Essay Contest Winner
By: Shelby Bowling My mother lost her fight with MSA on December 24, 2021. Although her journey was tough, the fight this woman had against this disease is truly inspiring. Her symptoms began a few years back. Nothing crazy at first: a few falls, first hospital...
The Biggest Inspiration in My Life: My Mother’s Perseverance Despite MSA
My name is Cassandra Shearer (middle in photo), and I'm writing about the biggest inspiration in my life my mother, Jennifer Shearer (right in photo). In 2017, at just 42 years old, my sweet mother was diagnosed with Early Onset Parkinson's Disease. This came as a...
Remembering Yang (Judy) Gao, an MSA Angel
The MSA Coalition would like to pay tribute to Yang (Judy) Gao, an MSA patient and active member of The MSA Coalition who passed away from the disease in 2020. The MSA Coalition was an important organization to Yang, and she remembered the group in her estate plan....
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