2018 MSA Patient & Family Conference Educational Session Videos

Recorded in Nashville, TN on October 3-4. Hosted by Vanderbilt Medical Center.

Step 1: The Image Release Form

 

Note: The conference will be videotaped. Please see the image release agreement that you may choose to accept or decline during online registration. If you prefer not to be videotaped, remind the staff at registration check-in and you will be seated accordingly.

Step 2:  Register for the conference:

PLEASE NOTE: SEATING IS LIMITED – EVENT REGISTRATION IS REQUIRED SO WE MAY RESERVE YOUR SPOT AT THE CONFERENCE. (Only those planning to attend in person are to register. The live stream at our website is open to everyone).

Step 3: Make Your Hotel Reservation:

 

Book your room ASAP!

The Conference is being held at: TBD

 

 

Tentative Conference Schedule

 

October 13 & 14 in Nashville, Tennessee USA

 

For questions, email conference@multiplesystematrophy.org

 

Location: Nashville, Tennessee USA
Start time: 9:00 AM – Friday, October 13th
End time: 4:00 PM – Saturday, October 14th

 

Friday, October 13

 

9:00 – 9:45 a.m. Registration/Coffee

9:45 – 10:15 a.m. Welcome and Ice Breaker

 

10:15 – 11:00 a.m. Opening Session: MSA: An Overview – Dr. Horacio Kaufmann & Dr. Lucy Norcliffe-Kaufmann
This introductory session will address the progression of symptoms, steps toward diagnosis and a research overview, including current studies and how to participate.

 

11:15 – 12:00 p.m. Support Group Meeting – Patients and Care Partners

12:00 – 1:00 p.m. Lunch

1:00 – 1:45 p.m. Workshop Session Slot 1

2:00 – 2:45 p.m. Workshop Session Slot 2

3:00 – 3:45 p.m. Workshop Session Slot 3

Note: There will be two or three sessions per time slot and selected sessions will be repeated.

 

Workshop Topics:

Allied Health:  A guide to practical strategies at home. PT/Speech/Occupational Therapy

Speech/Diet-Nutrition:  This session will address speech, swallowing, nutrition, when to consider a feeding tube and relevant information.

Practical Planning:  Guidance will be offered on how to file for disability insurance, plan for caregiving and financial needs, prepare for advanced directives/living wills, last wills, and brain donation arrangements.

Creative Arts:  Research supports the benefits of the creative arts in neurological disorders. Enjoy some strategies and get a taste of music, dance, and art therapy.

Urology Workshop:  A discussion of current treatment for urology issues related to MSA along with a demonstration of selected techniques for at home care.

How You Can Help:  Many families want to be proactive and empowered as they battle MSA. Strategies to generate awareness, to start a support group, and effective fundraising techniques will be discussed.

 

Noon – 4 p.m. Exhibits

 

6 – 9 p.m. Dinner Reception & Cash Bar

MSA Community Arts – A showcase of the creative work of MSA patients and care partners

NOTE:  Information on how to participate coming soon!

Saturday, October 14

 

8:00 – 8:45 a.m. Registration & Breakfast

8:45 – 9:00 a.m. Welcome

Vanderbilt Hosts – Dr. David Robertson & Dr. Daniel Claassen

MSA Coalition Board Chair – Cynthia Roemer

 

9:00 – 11:15 a.m. Symptoms, Treatment Management & Current Research
Autonomic Issues – Dr. Amanda Peltier
Movement Disorder Issues – Dr. Daniel Claassen
Medical Q & A

11:15 – 12:30 p.m. Exhibits

Lunch

12:30 – 2:00 p.m. Integrative Health/Approaches to Alternative Care – Dr. Gurjeet Birdee

Panel Q & A
Caregiver Perspective – Larry Kellerman
Patient Perspective

2:15 – 3:15 p.m. Closing Session – Research – Selected Findings and Future Directions

3:15 – 3:30 p.m. Closing Remarks

3:30 – 4:15 p.m. Support Group Meetings – Patients & Care Partners