2017 MSA Coalition Patient & Family Conference

October 13 & 14 in Nashville, Tennessee USA

Location: Nashville, Tennessee USA
Start time:
9:00 AM – Friday, October 13th
End time: 4:00 PM – Saturday, October 14t

Medical Host: Vanderbilt University Medical Center

Medical Team: 

Lundbeck is the Super Sponsor of the 2017 MSA Coalition Annual Conference
Special Thanks to our Conference Super Sponsor
  • Bonnie Black, RN, NP
  • Daniel Claassen, MD
  • Amanda Peltier, MD
  • David Robertson, MD

Download Conference Slides and Handouts

Registration is  Closed to Attend in Person, But….

Platinum Sponsor

Watch it Live on Facebook!

Tentative Conference Schedule

Friday, October 13

9:00 – 9:45  a.m. Registration/Coffee

9:45 – 10:15 a.m.  Welcome and Ice Breaker

10:15 – 11:00 a.m.  Opening Session: MSA: An Overview – Dr. Horacio Kaufmann & Dr. Lucy Norcliffe-Kaufmann
This introductory session will address the progression of symptoms, steps toward diagnosis and a research overview, including current studies and how to participate.

11:15 – 12:00 p.m. Support Group Meeting – Patients and Care Partners

12:00 – 1:00 p.m. Lunch

1:00 – 1:45 p.m. Workshop Session Slot 1

2:00 –  2:45 p.m. Workshop Session Slot 2

3:00 –  3:45 p.m. Workshop Session Slot 3

Note: There will be two or three sessions per time slot and selected sessions will be repeated.

Workshop Topics:

Allied Health: A guide to practical strategies at home. PT/Speech/Occupational Therapy

Speech/Diet-Nutrition: This session will address speech, swallowing, nutrition, when to consider a feeding tube and relevant information.

Practical Planning: Guidance will be offered on how to file for disability insurance, plan for caregiving and financial needs, prepare for advanced directives/living wills, last wills, and brain donation arrangements.

Creative Arts:Research supports the benefits of the creative arts in neurological disorders. Enjoy some strategies and get a taste of music, dance, and art therapy.

Urology Workshop: A discussion of current treatment for urology issues related to MSA along with a demonstration of selected techniques for at home care.

How You Can Help: Many families want to be proactive and empowered as they battle MSA. Strategies to generate awareness, to start a support group, and effective fundraising techniques will be discussed.

 

Noon – 4 p.m. Exhibits

6 – 9 p.m. Dinner Reception & Cash Bar
MSA Community Arts –  A showcase of the creative work of MSA patients and  care partners
NOTE: Information on how to participate coming soon!

Saturday, October 14

8:00 – 8:45 a.m. Registration & Breakfast

8:45 – 9:00 a.m. Welcome 

Vanderbilt Hosts – Dr. David Robertson & Dr. Daniel Claassen

MSA Coalition Board Chair – Cynthia Roemer

9:00 – 11:15 a.m. Symptoms, Treatment Management & Current Research
Autonomic Issues – Dr. Amanda Peltier
Movement Disorder Issues – Dr. Daniel Claassen
Medical Q & A

11:15 – 12:30 p.m. Exhibits
Lunch 

12:30 – 2:00 p.m. Integrative Health/Approaches to Alternative Care – Dr. Gurjeet Birdee
Panel Q & A
Caregiver Perspective – Larry Kellerman 
Patient Perspective
– Katie Kim

2:15 – 3:15 p.m. Closing Session – Research – Selected Findings and Future Directions
Presenter:
Dr. Vik Khurana

3:15 – 3:30 p.m. Closing Remarks

3:30 – 4:15 p.m. Support Group Meetings – Patients & Care Partners