2017 MSA Coalition Patient & Family Conference
October 13 & 14 in Nashville, Tennessee USA
Location: Nashville, Tennessee USA
Start time: 9:00 AM – Friday, October 13th
End time: 4:00 PM – Saturday, October 14th
Medical Host: Vanderbilt University Medical Center
- Bonnie Black, RN, NP
- Daniel Claassen, MD
- Amanda Peltier, MD
- David Robertson, MD
Registration is Closed to Attend in Person, But….
Tentative Conference Schedule
Friday, October 13
9:00 – 9:45 a.m. Registration/Coffee
9:45 – 10:15 a.m. Welcome and Ice Breaker
10:15 – 11:00 a.m. Opening Session: MSA: An Overview – Dr. Horacio Kaufmann & Dr. Lucy Norcliffe-Kaufmann
This introductory session will address the progression of symptoms, steps toward diagnosis and a research overview, including current studies and how to participate.
11:15 – 12:00 p.m. Support Group Meeting – Patients and Care Partners
12:00 – 1:00 p.m. Lunch
1:00 – 1:45 p.m. Workshop Session Slot 1
2:00 – 2:45 p.m. Workshop Session Slot 2
3:00 – 3:45 p.m. Workshop Session Slot 3
Note: There will be two or three sessions per time slot and selected sessions will be repeated.
Allied Health: A guide to practical strategies at home. PT/Speech/Occupational Therapy
Speech/Diet-Nutrition: This session will address speech, swallowing, nutrition, when to consider a feeding tube and relevant information.
Practical Planning: Guidance will be offered on how to file for disability insurance, plan for caregiving and financial needs, prepare for advanced directives/living wills, last wills, and brain donation arrangements.
Creative Arts:Research supports the benefits of the creative arts in neurological disorders. Enjoy some strategies and get a taste of music, dance, and art therapy.
Urology Workshop: A discussion of current treatment for urology issues related to MSA along with a demonstration of selected techniques for at home care.
How You Can Help: Many families want to be proactive and empowered as they battle MSA. Strategies to generate awareness, to start a support group, and effective fundraising techniques will be discussed.
Noon – 4 p.m. Exhibits
6 – 9 p.m. Dinner Reception & Cash Bar
MSA Community Arts – A showcase of the creative work of MSA patients and care partners
NOTE: Information on how to participate coming soon!
Saturday, October 14
8:00 – 8:45 a.m. Registration & Breakfast
8:45 – 9:00 a.m. Welcome
Vanderbilt Hosts – Dr. David Robertson & Dr. Daniel Claassen
MSA Coalition Board Chair – Cynthia Roemer
9:00 – 11:15 a.m. Symptoms, Treatment Management & Current Research
Autonomic Issues – Dr. Amanda Peltier
Movement Disorder Issues – Dr. Daniel Claassen
Medical Q & A
11:15 – 12:30 p.m. Exhibits
12:30 – 2:00 p.m. Integrative Health/Approaches to Alternative Care – Dr. Gurjeet Birdee
Panel Q & A
Caregiver Perspective – Larry Kellerman
Patient Perspective – Katie Kim
2:15 – 3:15 p.m. Closing Session – Research – Selected Findings and Future Directions
Presenter: Dr. Vik Khurana
3:15 – 3:30 p.m. Closing Remarks
3:30 – 4:15 p.m. Support Group Meetings – Patients & Care Partners