Support Hotline: (866) 737-5999 info@multiplesystematrophy.org
12 Days 12 Ways

12 Days 12 Ways

12 More Days until the end of our Holiday Hope Campaign! Here are 12 Ways to Give to The Multiple System Atrophy Coalition this Holiday Season!

With the end of our Holiday Hope for MSA Campaign fast approaching, the MSA Coalition is within striking range of raising over $1 million overall in fiscal year 2018. The $1 million mark is very important to achieve as it will enable us to be officially monitored by Charity Navigator and will open up more opportunities to receive grants from other private and government organizations.

Below are 12 ways you can help the MSA Coalition achieve this major financial milestone which will allow us to better pursue our mission of improving quality of life while building hope for those living with MSA.

1. Donate on CROWDRISE! Remember All Crowdrise Donations will be MATCHED! https://www.crowdrise.com/holiday-hope-4-msa

Go a step further and Join the Team to Create your own Crowdrise Awareness and Fundraising Page! EMAIL the link to all your friends and ask for their support. Easily track who gives to your page and followup with thanks.

2. Donate on FACEBOOK! https://www.fb.com/fund/MultipleSystemAtrophyCoalition

Go a step further and Start your own Facebook Fundraiser! Click the blue INVITE button individually for everyone in your Facebook friends list and SHARE, SHARE, SHARE!

3. Donate on the MSA Coalition’s WEBSITE! Add a tribute to a loved one, designate your gift to research, education or where the need is greatest: https://www.multiplesystematrophy.org/donate-now

4. Donate with a CHECK or MONEY ORDER! Make it payable to: MSA Coalition, 7918 Jones Branch Drive, Suite 300, McLean, VA 22102

5. Donate to the MSA Coalition PAYPAL GIVING FUND! PayPal will add 1% to your gift and there are no fees! https://www.paypal.com/fundraiser/charity/74271

6. Donate via the COMBINED FEDERAL CAMPAIGN! Federal employees and retirees, please note our CFC number is 42606.

7. Donate STOCK or Donate by BANK WIRE TRANSFER! Just email our treasurer for assistance with these options. clanger@msacoalition.org or phone 866-737-4999

8. Arrange Now to LEAVE A LEGACY! Remember the MSA Coalition in your will: https://www.multiplesystematrophy.org/fundraising/planned-giving

9. Donate your USED CAR! https://www.multiplesystematrophy.org/fundraising/car-donation/

10. Send a HOLIDAY GREETING CARD!

https://www.justgiving.com/givecards/charity/us/2069234

11. Send or Post a PURPLE HEART in tribute to your loved one at the MSA Coalition Wall of Love. https://www.givinggrid.com/ajketo/

12. Post a PHOTO of your loved one at the MSA Coalition Angels and Warriors Page. https://www.givinggrid.com/tmxovc/

Copy and Paste: The Easiest Fundraiser Ever

Copy and Paste: The Easiest Fundraiser Ever

Is setting up a fundraiser intimidating, confusing, or to time consuming?

Well, now you don’t have to set up anything to help us fundraise. All you need to do is copy, paste and send. That’s right. Copy, paste, and send. Further down in this blog post you will see five prewritten asks. All you need to do is pick the one that fits you best, paste it into your email and social pages, (customize it a tad if you want), and send. Keep reading to see why your help is so important and for a few more details about this super easy fundraiser.

We need at least 100 MSA families that have not yet raised money to Copy, Paste, and Send to their contacts

If Multiple System Atrophy has impacted you or a loved one, we need you as a fundraiser. We simply can’t hit our goals of finding treatments and a cure without every MSA family chipping in. MSA is too rare to expect anybody but our own community and network to care.

Plus, today only, we still have $150,000 in matching gift pledges to earn. That’s right, every dollar your network donates will be matched dollar-for-dollar. We can’t let that money go unclaimed. So, please help!

You and YOUR NETWORK can make a big difference!!

So, we have made it super easy to fundraise. You don’t even need to set up your own fundraising page. You can use the MSA Coalition’s Group fundraiser page!

All you need to do is copy and paste the page link into a group email and into a Facebook post along with our prewritten asks.

Here they are:

Multiple System Atrophy Fundraising Copy and Paste Asks:

(Copy one of the 5 “ask” choices below, Paste it in Email and Social, Customize with names, Send and Post, Repeat 3-times on Giving Tuesday and then twice-weekly until Jan 3, 2018)

1) For MSA Patients:

Dear family and friends

As you may know, I am battling a rare disease called Multiple System Atrophy. Very few people have heard of it, so research to find treatments and a cure is terribly underfunded. Therefore, it is up to patients like me to create awareness and to fundraise.

This Holiday season, I would very much appreciate a donation on my behalf to the Multiple System Atrophy Coalition. The MSA Coalition is a 501c3 dedicated to finding a cure and right now your tax-deductible donation to the link below will be matched dollar-for-dollar by a generous matching pledge.

Please click on the orange Donate button on this page: https://www.crowdrise.com/o/en/campaign/msa-coalition-holiday-giving-2017

Thank you!

2) For the Spouse of a Current MSA Patient:

Dear family and friends

As you may know, my {husband/wife} is battling a rare disease called Multiple System Atrophy. Very few people have heard of it, so research to find treatments and a cure is terribly underfunded. Therefore, it is up to patients like me to create awareness and to fundraise.

This Holiday season, I would very much appreciate a donation in honor of {NAME} to the Multiple System Atrophy Coalition. The MSA Coalition is a 501c3 dedicated to finding a cure and right now your tax-deductible donation to the link below will be matched dollar-for-dollar by a generous matching pledge.

Please click on the orange Donate button on this page: https://www.crowdrise.com/o/en/campaign/msa-coalition-holiday-giving-2017

Thank you!

3) For The Child of an MSA Patient

Dear family and friends

As you may know, my {father/mother} is battling a rare disease called Multiple System Atrophy. Very few people have heard of it, so research to find treatments and a cure is terribly underfunded. Therefore, it is up to patients like me to create awareness and to fundraise.

This Holiday season, I would very much appreciate a donation in honor of {NAME} to the Multiple System Atrophy Coalition. The MSA Coalition is a 501c3 dedicated to finding a cure and right now your tax-deductible donation to the link below will be matched dollar-for-dollar by a generous matching pledge.

Please click on the orange Donate button on this page: https://www.crowdrise.com/o/en/campaign/msa-coalition-holiday-giving-2017

Thank you!

4) For The Friend of an MSA Patient

Dear family and friends

As you may know, my dear friend {fNAME} is battling a rare disease called Multiple System Atrophy. Very few people have heard of it, so research to find treatments and a cure is terribly underfunded. Therefore, it is up to patients like me to create awareness and to fundraise.

This Holiday season, I would very much appreciate a donation in honor of {NAME} to the Multiple System Atrophy Coalition. The MSA Coalition is a 501c3 dedicated to finding a cure and right now your tax-deductible donation to the link below will be matched dollar-for-dollar by a generous matching pledge.

Please click on the orange Donate button on this page: https://www.crowdrise.com/o/en/campaign/msa-coalition-holiday-giving-2017

Thank you!

5) In Memory of a Deceased MSA Patient

Dear family and friends

As you may know, my {spouse/father/mother/brother/sister/friend}, {NAME} passed away from a rare disease called Multiple System Atrophy. Very few people have heard of it, so research to find treatments and a cure is terribly underfunded. Therefore, it is up to patients like me to create awareness and to fundraise.

This Holiday season, I would very much appreciate a donation in memory of {NAME} to the Multiple System Atrophy Coalition. The MSA Coalition is a 501c3 dedicated to finding a cure and right now your tax-deductible donation to the link below will be matched dollar-for-dollar by a generous matching pledge.

Please click on the orange Donate button on this page: https://www.crowdrise.com/o/en/campaign/msa-coalition-holiday-giving-2017

Thank you!

Giving Tuesday – A Critical Day for Multiple System Atrophy Research

Giving Tuesday – A Critical Day for Multiple System Atrophy Research

If you want to have the biggest impact possible in the quest to find better diagnostic tools, treatments and hopefully a cure for multiple system atrophy #GivingTuesday (November 28, 2017) is the most important day of the year!

100% of every dollar raised, matched, and won on #GivingTuesday will go directly into the MSA Coalition Research Grant Program! If you help us fundraise the total could reach $200,000 or more!

Don’t stay on the sidelines during this critical day!

Read on to learn more….

History of Giving Tuesday

#GivingTuesday has been celebrated each year since 2012, on the first Tuesday after Thanksgiving (in the U.S.). It symbolizes the start of the Holiday giving season, which for most charities represents the time of the year when the biggest portion of their donations are received. The MSA Coalition has participated each year through its partnership with the CrowdRise Holiday Challenge. Last year the MSA Coalition raised more than 10% of its total revenue for the year on #GivingTuesday.

The CrowdRise Holiday Challenge, A Great Event For MSA

This year’s CrowdRise Holiday Challenge runs from November 21 – January 3, 2018. It is being

The Multiple System Atrophy Coalition's 2017 Holiday Hope for a Cure fundraiser on Crowdrise

Join The MSA COalition’s 2017 Holiday Hope For A Cure Team

sponsored by the Newman’s Own Foundation and is offering $500,000 in prize money to the top charities. The winner of the 6-week challenge will receive $150,000 and the top 10 causes will receive prize money. There are also bonus prizes throughout the Challenge with another $100,000 being distributed. Plus, there are separate prizes for #GivingTuesday totaling another $100,000. The top 3 causes will receive grand prizes.

Who wants to see a significant portion of these awards coming into the MSA Coalition for research, education and awareness initiatives?

If you are saying “Me! Me! Me!” read on…

Why the MSA Coalition Needs You on Giving Tuesday

We all know multiple system atrophy is a very rare and little known disease. Because of this it is very difficult to motivate outsiders to give to the MSA cause, let alone to fundraise. Grass roots, at least for now, is our single most effective way to raise money. That means, we need YOU to participate.

Last year (2016), the MSA Coalition had 100 families actively participate in the CrowdRise Holiday Challenge. On Giving Tuesday we raised just over $90,000, which was good enough for third place for the day. Unfortunately, two other charities did better and the Coalition did not win any of the prize money for the day. On the bright side, The MSA Coalition maintained its third place status throughout the CrowdRise Holiday Challenge and in the end secured the Third Place prize of $25,000 which was added on to the Challenge total of over $300,000 raised for MSA.

That’s right, with just 100 families participating the MSA Coalition raised over $300,000 dollars in 6 weeks and added another $25,000 in prize money to that total. Imagine what we could do if 200 families participated! What about 300, 400 or even 500! This is why we need you!

1: Sign Up to Help Us Raise and Win Money This Holiday Season

Joining our team is easy and will only take a few minutes

MSA Coalition 2017 Holiday Hope For A Cure Team Members

2017 Holiday Hope for a Cure Team Members

Join the MSA Coalition’s 2017 Holiday Hope for a Cure Team

2: Like and Follow The MSA Coalition’s Facebook Page for Volunteers

Don’t fundraise alone! Become a part of the MSA Coalition team of fundraising volunteers. We

Diane & Elaine Offer Hope & Advocacy for those with MSA

will post lots of great tips, updates and key dates to help make your fundraiser a success! Likewise, share your ideas, questions and success stories to help the whole team become better!

Like The MSA Coalition Volunteers Facebook Page

3: Sign Up for Special Giving Tuesday Newsletters

  • How to Set Up a CrowdRise Holiday Challenge Fundraiser
  • Tips on Fundraising Easily and Successfully
  • Success Stories From Other MSA fundraisers
  • Alerts About Key Fundraising Dates and Bonus Challenges
  • Fundraising Updates

If you are on the fence or nervous about fundraising, sign up for our newsletter and select the Holiday Challenge under fundraising as an interest. It is not a commitment to fundraise, it is only a commitment to learn more!

Subscribe to our mailing list

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MSA Updates

Fundraising

Email Format


Giving Tuesday – A Critical Day for Multiple System Atrophy Research

Copy and Paste: The Easiest Fundraiser Ever

Is setting up a fundraiser intimidating, confusing, or to time consuming?

Well, now you don’t have to set up anything to help us fundraise. All you need to do is copy, paste and send. That’s right. Copy, paste, and send. Further down in this blog post you will see five prewritten asks. All you need to do is pick the one that fits you best, paste it into your email and social pages, (customize it a tad if you want), and send. Keep reading to see why your help is so important and for a few more details about this super easy fundraiser.

We need at least 100 MSA families that have not yet raised money to Copy, Paste, and Send this week.

If Multiple System Atrophy has impacted you or a loved one, we need you as a fundraiser. We simply can’t hit our goals of finding treatments and a cure without every MSA family chipping in. MSA is too rare to expect anybody but our own community and network to care.

Plus, right now, we still have $60,000 in matching gift pledges to earn. That’s right, every dollar your network donates will be matched dollar-for-dollar. We can’t let that money go unclaimed. So, please help!

You and YOUR NETWORK can make a big difference!!

So, we have made it super easy to fundraise. You don’t even need to set up your own fundraising page. You can use the MSA Coalition’s Group fundraiser page!

All you need to do is copy and paste the page link into a group email and into a Facebook post along with our prewritten asks.

Here they are:

Multiple System Atrophy Fundraising Copy and Paste Asks:

(Copy one of the 5 “ask” choices below, Paste it in Email and Social, Customize with names, Send and Post, Repeat twice-weekly until Jan 5, 2017)

1) For MSA Patients:

Dear family and friends

As you may know, I am battling a rare disease called Multiple System Atrophy. Very few people have heard of it, so research to find treatments and a cure is terribly underfunded. Therefore, it is up to patients like me to create awareness and to fundraise.

This Holiday season, I would very much appreciate a donation on my behalf to the Multiple System Atrophy Coalition. The MSA Coalition is a 501c3 dedicated to finding a cure and right now your tax-deductible donation to the link below will be matched dollar-for-dollar by a generous matching pledge.

Please click on the orange Donate button on this page: https://www.crowdrise.com/holiday-hope-for-an-msa-cure-2016

Thank you!

2) For the Spouse of a Current MSA Patient:

Dear family and friends

As you may know, my {husband/wife} is battling a rare disease called Multiple System Atrophy. Very few people have heard of it, so research to find treatments and a cure is terribly underfunded. Therefore, it is up to patients like me to create awareness and to fundraise.

This Holiday season, I would very much appreciate a donation in honor of {NAME} to the Multiple System Atrophy Coalition. The MSA Coalition is a 501c3 dedicated to finding a cure and right now your tax-deductible donation to the link below will be matched dollar-for-dollar by a generous matching pledge.

Please click on the orange Donate button on this page: https://www.crowdrise.com/holiday-hope-for-an-msa-cure-2016

Thank you!

3) For The Child of an MSA Patient

Dear family and friends

As you may know, my {father/mother} is battling a rare disease called Multiple System Atrophy. Very few people have heard of it, so research to find treatments and a cure is terribly underfunded. Therefore, it is up to patients like me to create awareness and to fundraise.

This Holiday season, I would very much appreciate a donation in honor of {NAME} to the Multiple System Atrophy Coalition. The MSA Coalition is a 501c3 dedicated to finding a cure and right now your tax-deductible donation to the link below will be matched dollar-for-dollar by a generous matching pledge.

Please click on the orange Donate button on this page: https://www.crowdrise.com/holiday-hope-for-an-msa-cure-2016

Thank you!

4) For The Friend of an MSA Patient

Dear family and friends

As you may know, my dear friend {fNAME} is battling a rare disease called Multiple System Atrophy. Very few people have heard of it, so research to find treatments and a cure is terribly underfunded. Therefore, it is up to patients like me to create awareness and to fundraise.

This Holiday season, I would very much appreciate a donation in honor of {NAME} to the Multiple System Atrophy Coalition. The MSA Coalition is a 501c3 dedicated to finding a cure and right now your tax-deductible donation to the link below will be matched dollar-for-dollar by a generous matching pledge.

Please click on the orange Donate button on this page: https://www.crowdrise.com/holiday-hope-for-an-msa-cure-2016

Thank you!

5) In Memory of a Deceased MSA Patient

Dear family and friends

As you may know, my {spouse/father/mother/brother/sister/friend}, {NAME} passed away from a rare disease called Multiple System Atrophy. Very few people have heard of it, so research to find treatments and a cure is terribly underfunded. Therefore, it is up to patients like me to create awareness and to fundraise.

This Holiday season, I would very much appreciate a donation in memory of {NAME} to the Multiple System Atrophy Coalition. The MSA Coalition is a 501c3 dedicated to finding a cure and right now your tax-deductible donation to the link below will be matched dollar-for-dollar by a generous matching pledge.

Please click on the orange Donate button on this page: https://www.crowdrise.com/holiday-hope-for-an-msa-cure-2016

Thank you!

Giving Tuesday – A Critical Day for Multiple System Atrophy Research

Multiple System Atrophy – A Devastating Diagnosis

by Cyndi Hungerford (in memory of Mark J. Hungerford)

WE NEED YOUR HELP TO REACH OUR GOAL! and to Defeat Multiple System Atrophy!

Our story began with odd symptoms in 2008 when my husband Mark thought he was walking funny in his boots then on a motorcycle run he nearly lost control of his bike going around a corner. Knowing something was wrong, we started seeing doctors. Doctor after doctor, test after test we were told there was nothing wrong. Finally, after being very persistant for an answer we got a diagnosis of Cerebellum Ataxia. Knowing we could live with that we would just have to adjust our lives to handle the condition.

markhungerford-1 markhungerford-2 markhungerford-3

Then he started developing new symptoms. He became very dizzy, had double and blurred vision, digestion problems, swallowing problems, dysfunctional bladder and then ended up with a permanent Foley catheter. He lost his ability to walk, talk, write & had constant headaches. Pain in his legs all the time on a daily basis with severe edema! Low blood pressure that was hard to regulate causing him to nearly pass out upon standing, then severely high blood pressure, difficulty breathing, severe Sleep Apnea causing him to stop breathing 19-24 times an hour and the list goes on and on.

Finally his doctor said there was something else going on so there were more tests and then they found it in his brain scan. The doctor explained to us the Cerebellum in the brain should be thick & dense, about the size of a large grapefruit, but this disease causes it to shrink and at his diagnosis it was the size of a 50 cent piece causing his body to fill the empty space in his head with spinal fluid making his head feel sloshy all the time. He couldn’t handle sudden movements at all. He had MSA, Multiple System Atrophy, a cruel degenerative disease with NO CURE!!! We wanted a second opinion so we went to Mayo Clinic in Rochester MN. After 2 days of nonstop tests we got the same news… MSA!!! In the spring of 2013 our whole world changed with this diagnosis!!!

We were devastated!! My husband was a strong man with his whole life ahead of him yet he lost everything, his hopes, his dreams, his dignity. He was completely dependent on me. I cared for him every day 24/7 until October 18th, 2016 when he made his final home in Heaven. We need answers about how to find this earlier and understand it so we can know how to treat it and STOP THIS DISEASE!!

We need a cure for multiple system atrophy!!!!

Please continue reading about what we are hoping for during the MSA Coalition’s Holiday Challenge Fundraising Campaign. PLEASE DONATE TO CURE Multiple System Atrophy!!!! PLEASE HELP US SO WE DON’T LOSE MORE LOVED ONES TO THIS DISEASE… IT COULD EASILY BE YOU OR A LOVED ONE… PLEASE HELP!!!! ANY DONATION COUNTS… IT ALL HELPS!!

>>>>>>> GOD BLESS YOU ALL <<<<<<<<<

* HAPPY HOLIDAYS *

Start your own CrowdRise Holiday Challenge MSA Fundraiser! It is very easy and takes about 10 minutes!!!!