By Dennis Bloemhof (Guest Blogger)
Janell, my loving wife of over 51 years, is ill with Multiple System Atrophy (MSA). As I write this, Janell is in hospice care.
When I think of MSA, relentless is the first thing that comes to mind. The patient may fight MSA, but it has never failed to vanquish its victims. Why is that? Probably because it is a very rare progressive neurodegenerative disease that afflicts only about 5 in 100,000 people. Make no mistake, MSA is a death sentence. But, before it takes our loved ones, it robs them of most every possible function for daily living we take for granted. It leaves them trapped in a body they can no longer control but they are cruelly aware of their continual decline.
My goal is to raise awareness of MSA and encourage donations for research to identify a cause and finding a cure.
We do not have a well known public figure afflicted with the misery of MSA. Consequently, MSA does not have the celebrity panache of thousands of people making donations in the fight against it. I am hoping with the help of our family and friends, we can change that.
All of us touched by MSA must join forces in the quest to find a cure. One easy way you can help today is to create your own tribute fundraiser page to honor your loved one. Just click “Fundraise for this Campaign” to Join the Team Now or reach out to the MSA Coalition and they will create your page for you. Email email@example.com or call 866-737-5999