New York, NY, March 5, 2018 –The Multiple System Atrophy (MSA) Coalition today announced it was invited to ring The Closing Bell at the New York Stock Exchange on March 5, 2018 at 4:00 p.m. ET. The event is a symbolic and high-profile way to “ring” in MSA Awareness Month which is observed every March.
The Closing Bellfor the New York Stock Exchange receives excellent media coverage and has a large social media following including 1.58 million followers on Twitter, more than 288,000 Likes on Facebook, and 66,000 Instagramfollowers. Photos of The Closing Bells are available via Associated Press/New York, Reuters America, Getty Images, Bloomberg Photo and European Press Agency. B-roll of the NYSE trading floor is available five minutes prior to the Opening and Closing Bell feeds. The Closing Bell feed, which begins at 3:58 p.m. ET, is available via Encompass loop #4090. Media seeking footage via The Switch should contact NYSE Broadcast at (212) 656-5483. The MSA Coalition will be sharing photos and videos of this event on its social media platforms, as well.
“The NYSE is very pleased to have the Multiple System Atrophy Coalition ringing The Closing Bell,” said NYSE representative. “It is important to support non-profits, especially when they represent a cause with major unmet needs. We hope the exposure our platform provides gives the MSA and rare disease communities a big boost in their awareness efforts.”
MSA is a rare and terminal neurodegenerative disorder that afflicts approximately 13,000 Americans and tens of thousands more around the world. MSA strikes in mid-life and has a life-expectancy of 5-9 years after diagnosis. It is characterized by Parkinsonian, autonomic nervous system, and cerebellar symptoms. Because it is so rare it is poorly understood, and an accurate diagnosis can take several years. After diagnosis, some symptoms can be treated to improve quality of life, but no cure is available.
“The MSA Coalition is very honored to ring The Closing Bell at the NYSE on behalf of the entire global multiple system atrophy community,” said Don Crouse, MSA Coalition Vice-Chairman. “We are extremely grateful to the New York stock Exchange for giving us a prominent platform to bring much needed visibility to this rare and always fatal disorder. We are also pleased to be joined at this ceremony by patients and caregivers, MSA NJ, and The MSA Awareness Shoe. Hopefully, as The Closing Bell rings on March 5thit will bring hope to the MSA community that advocates are working on their behalf to improve awareness and that the world is starting to listen.”
Other significant MSA Awareness Month activities being sponsored and led by the MSA Coalition include its primary sponsorship of the 6thInternational MSA Congress (March 1-3 in NYC), which is the single most important gathering of MSA researchers and advocacy groups; and, hosting the 1st MSA Global Advocacy Meeting to be held in conjunction with the MSA Congress. The goal of the advocacy meeting is to bring together MSA and related charities to discuss key activities and challenges, and to develop coordinated plans for advancing the mission to support the MSA patient community. Additionally, The MSA Coalition along with other MSA charities are supporting a nationwide campaign to have all US states declare March Multiple System Atrophy Awareness Month. March is also a big month for individuals affected by MSA to set up fundraisers in support of their selected charity.