MULTIPLE SYSTEM ATROPHY COALITION NAMED “2018 TOP-RATED NONPROFIT” by GreatNonprofits
Award based on Outstanding Online Reviews
Charlotte, NC –The Multiple System Atrophy Coalition announced today it has been named a “2018 Top-Rated Nonprofit” by GreatNonprofits, the leading provider of user reviews of charities and nonprofits.
The MSA Coalition provides important services and programs to people around the world affected by Multiple System Atrophy, a rare and terminal neurodegenerative disorder striking in the middle years of life. People with MSA are often initially misdiagnosed as having Parkinson’s disease, but the rare disorder progresses much faster and affects multiple parts of the body’s neurological systems. Over the past 4 years, the MSA Coalition has funded 36 research grants totaling more than $1.6 million, resulting in greater understanding of the disorder and providing new hope and optimism to the MSA research community. No other MSA charity has funded research to this extent on a global basis.
“We are honored to be named a 2018 Top-Rated Nonprofit,” says [Cyndi Roemer, Board Chair, The MSA Coalition. “We are proud of our accomplishments this year, including our primary sponsorship of the 6th International MSA Congress, hosting the first-ever Global MSA Advocacy meeting, hosting our biggest annual patient and family conference, along with our continued dedication to encouraging and funding meaningful research. Importantly, the MSA community, those impacted by this horrible disease are recognizing our efforts with great reviews. As an all-volunteer run organization these positive reviews are greatly appreciated”
The Top-Rated Nonprofit Award is the based on the rating and number of reviews that the MSA Coalition received from volunteers, donors and aid recipients. “We found that The Multiple System Atrophy Coalition organization is about dedicated friendly volunteers with numerous experiences helping the community of people with a very rare incurable brain disease. They offer a tremendous amount of information specifically related to Multiple System Atrophy. As a caregiver for my wife with MSA-C, their organization is one of the first places that I go looking for answers, information or direction. They are a great organization that represents our MSA community around the world to try and find a cure. My Family and Friends thank all of the dedicated volunteers;” wrote Tom T., a n MSA caregiver.
“The Multiple System Atrophy Coalition is a great example of a nonprofit making a real difference for their community,” said Perla Ni, CEO of GreatNonprofits, “Their award is well-deserved recognition not only of their work, but the tremendous support they receive, as shown by the many outstanding reviews they have received from people who have direct experience working with the MSA Coalition.”
GreatNonprofits is the leading website where people share stories about their personal experiences on more than 1.6 million charities and nonprofits. The GreatNonprofits Top-Rated Awards are the only awards for nonprofits determined by those who have direct experience with the charities – as donors, volunteers and recipients of aid.
The complete list of 2018 Top Rated Nonprofits can be found at: https://greatnonprofits.org/awards/browse/Campaign:Year2018/Issue:All/Page:1
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