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MSA Coalition End of Year Giving

Building Hope Through Support, Advocacy, Education and Research

Fight MSA With Your Tax Deductible Gift for 2020

This year was another successful one for the MSA Coalition. Our Annual Conference raised the bar with the high-quality education and support offered to those who attended. With an all-Volunteer staff, our Goverance is second to none. Your end of year gift looks good on your tax return, and on you.

The MSA Coalition is leading the charge against MSA and have been doing it the longest. And so have you. Offering hope for a cure starts with your donations. Thank you.

Annual Appeal Update 2020 – The Great Year Forward

Dear MSA Fundraisers and Donors,

This Holiday season there are approximately 15,000 Americans and 250,000 more people around the world struggling with their fight against multiple system atrophy (MSA). MSA is a rare and terminal disorder. It progresses steadily and relentlessly.

Starting with symptoms that can cause problems with balance and lightheadedness, it can lead quickly to the need for a cane, walker and wheelchair. It typically causes problems with sleep, pain, low and high blood pressure, breathing, digestion and urination. There is no specific treatment or a cure for this horrible disease. But there is increasing hope!

In the past year, through your generous gifts, you have helped the MSA Coalition enhance the quality of life and give help and hope to families dealing with multiple system atrophy.

• We held our largest conference ever, an event where patients and families had the opportunity to talk face-to-face with some of the leading researchers and clinicians in the world.

• Our conference sessions were live-streamed and are also available for viewing on our website.

• Perhaps most exciting of all, we have embarked on a new research initiative which provides grants to those around the world who will collaborate, share data and findings, and break down barriers in order to find ways to slow disease progression and ultimately find a cure.

Thanks to our #GivingTuesday “100% to Research” promise combined with our matching pledges and generous planned giving gifts our research fund has reached several million dollars and the MSA Coalition is becoming a major stakeholder in guiding and funding multiple system atrophy research.

None of this would have happened this year without you and our other supporters. The work will move forward with your continued help.

We made a difference to patients and their families every day.

• The Coalition reached out with one-on-one assistance, providing answers and listening ears. Our toll-free help line, staffed with volunteers who have been MSA carepartners, know how to knowledge, help and compassion.

• Our board members attended various MSA conferences, reaching out to attendees and making them aware of the ways the MSA Coalition can help.

If you want to make a difference on a local and global scale, the MSA Coalition is the charity to support! See how the MSA Coalition meets the 10 most important criteria for evaluating nonprofits.

Donate to this year’s Holiday Hope campaign starting on Giving Tuesday, December 3.

And please remember to ask your employer if they offer matching gifts—or check here: hope to see you on the team!

Create your own fundraising and awareness page to tell your story and help us achieve our mission.Diane AdkinsBoard of Directors, Chair of the Fundraising Committee

Donate to the MSA Coalition Holiday Year-End Campaign

Start Your Holiday Year-End Fundraiser

Benefits of Giving a Charitable Contribution


The following is from Charity Navigator, who believe that your primary motivation to donate to charity should be altruism; however, they also think you should know that great tax benefits exist for those who give.

Here are some of the rules and benefits you should know about.

  • A gift to a qualified charitable organization may entitle you to a charitable contribution deduction against your income tax if you itemize deductions. You must itemize in order to take a charitable deduction. Make sure that if you itemize, your total deductions are greater than the standard deduction. If they’re not, stick with the standard deduction.
  • A contribution is deductible in the year in which it is paid. Putting the check in the mail to the charity constitutes payment. A contribution made on a credit card is deductible in the year it is charged to your credit card, even if payment to the credit card company is made in a later year.
  • Most, but not all, charitable organizations qualify for a charitable contribution deduction. You can deduct contributions only if they are made to or for the use of a qualified recipient. No charitable contribution deduction is allowed for gifts to certain other kinds of organizations, even if those organizations are exempt from income tax. Contributions to individuals, foreign governments, foreign charities, and certain private foundations similarly are not deductible. All organizations rated by Charity Navigator qualify for charitable status, and you can deduct your donations to these organizations, subject to certain limitations.
  • There are limits to how much you can deduct, but they’re very high. For most people, the limits on charitable contributions don’t apply. Only if you contribute more than 20% of your adjusted gross income to charity is it necessary to be concerned about donation limits. Under the new tax law, if the contribution is made to a public charity, the deduction is limited to 60% of your contribution base. For example, if you have an adjusted gross income of $100,000, your deduction limit for that year is $60,000,
  • The rules on 20% limits and 30% limits are way too complicated to delve into in this space. If you are giving to organizations other than those mentioned above, first consult with your tax adviser to determine whether these other ceilings will apply. If you give an amount in excess of the applicable limitation to charity in one year, the excess is carried over for the next five years.
  • Rules exist for non-cash donations. If you contribute property owned for more than one year, the value of the deduction is normally equal to the property’s fair market value. You have an advantage when you contribute appreciated property because you get a deduction for the full fair-market value of the property. You are not taxed on any of the appreciation, so, in effect, you receive a deduction for an amount that you never reported as income.
  • You should clearly contribute, rather than throw out, old clothes, furniture, and equipment that you no longer use. However, bear in mind the condition of your donated goods. The IRS only permits deductions for donations of clothing and household items that are in “good condition or better.”
  • You need to maintain proper documentation of your contributions. If you want to claim a charitable deduction for a cash gift, then you must be prepared to verify your claim. In other words, you cannot deduct the spare change dropped in a charity’s collection bucket without the proper documentation. If you are audited, the IRS will only accept one of the following to substantiate a monetary gift: a canceled check, credit card statement, bank statement or a written acknowledgment from the charity. Donating online via Charity Navigator’s Giving Basket helps you fulfill this requirement since all your giving records will be stored in one place enabling you to quickly obtain an annual record of your charitable giving for tax preparation.
  • If you contribute $250 or more, then you must prove to the IRS that you (a) made the donation and (b) you didn’t receive anything in return for that donation. Therefore you’ll need a receipt from the charity that includes the following information: the charity’s name, the value of your gift, the date you made your donation and a statement verifying that you did not receive any goods or services in return for your gift.
  • Be especially careful when valuing a donated vehicle. Although a law implemented in 2005 attempted to crack down on taxpayers who were overvaluing donated vehicles, the government reports that many taxpayers still inflate the value of such donations. As a result, the IRS continues to take a close look at such deductions. If you donated a car worth more than $500, then you can only deduct the amount the charity received from the sale of your car. You can use the receipt from the charity to substantiate your claim. Do not attempt to use the fair market value unless one of the following conditions apply: (1) instead of selling the vehicle, the charity keeps and uses it, (2) the charity makes improvements to the car before selling it, (3) your car is sold at a discounted price to a person with a low income, (4) or if the car is worth less than $500. See our tip sheet for more guidance on donating vehicles.
  • The IRA charitable rollover offers tax benefits for those that qualify. The IRA Charitable Rollover allows individuals who are 70 1/2 years old to donate up to $100,000 to charitable organizations directly from their IRA, without that donation being counted as taxable income when it is withdrawn. To qualify, contributions must come from a traditional IRA or Roth IRA, and they must be made directly to a qualified charitable organization. Additionally, the donor may not receive goods or services in exchange for the donation, and they must retain a receipt from each charity to which a donation is made.

The above summary of certain federal income tax laws is provided for informational purposes only. We urge you to consult your tax advisor for the federal, state, and local tax consequences of a charitable contribution.

About the MSA Coalition

Multiple System Atrophy (MSA) is a rare neurodegenerative disorder that can cause a multitude of symptoms in any combination including impairments to balance, difficulty with movement, poor coordination, bladder dysfunction, sleep disturbances and poor blood pressure control.

The disease was first known as Shy-Drager Syndrome. Currently, it is believed that MSA is “sporadic,” meaning that there are no established genetic or environmental factors that cause the disease. A few reports have described families with MSA, but this finding is probably very rare.