March is Multiple System Atrophy Awareness Month
Every March is designated as Multiple System Atrophy Awareness Month and provides the opportunity to educate the world about this rare and fatal neurodegenerative disorder. By raising awareness of MSA, we can help improve early diagnosis, encourage policymakers to increase access to services and fund research into MSA, as well as reduce the feelings of isolation faced by patients and caregivers.
During Multiple System Atrophy Awareness Month, we’ll share many opportunities for you to Shine a Light on MSA. The MSA Coalition will provide daily suggestions on ways to share your story, tell more people about MSA, and learn from other people in the MSA community.
5 Ways to Get Involed in MSA Awareness Month
1) Change your profile photo on your social media pages
Announce to your friends and followers that March is MSA Awareness Month.
On Facebook, you can even share a short description with the update and make the new profile image temporary for the month of March if you’d like.
2) Start sharing MSA awareness content!
The MSA Coalition will be sharing educational and awareness resources all month long via social media. Follow our accounts and share our messaging directly to your own pages:
You can also draft and share your own messages this month. Here are some resources you can use to accompany your posts if you’d like to utilize them:
3) Make a Contribution or Start a Fundraiser
With the financial contributions of our supporters, The MSA Coalition can fund groundbreaking MSA research to help us better understand, diagnose, and treat MSA. We also utilize these contributions for education, support, and advocacy efforts on behalf of our community. Here are a few ways you can help us this month!
4) Submit Your Story for our Short Essay Contest
It’s the personal stories of our patients and their family members that really touch the hearts of those who have never heard of the disease and drive them to help in our fight against MSA. You can help by sharing a short essay with our community. Learn more and submit your story here.
After you submit, our staff will review and post your short essay to our MSA Awareness Month Padlet Board. Share this link with as many people as you can, and make sure to have them like or comment on your story.
At the end of the month, the top two essays with the most comments and likes will win a $100 Amazon gift card for their efforts in sharing the stories of our community with so many people.
5) Leave a Review for The MSA Coalition on GreatNonprofits.org
Help The MSA Coalition get recognized as a Top Nonprofit in 2023 by leaving a review on our organization’s profile page.
For the past 7 consecutive years, The MSA Coalition has been acknowledged as a Top-Rated Nonprofit by GreatNonprofits.org, the leading platform for community-sourced stories about nonprofits. By sharing your story and photos along with how The MSA Coalition has supported you, we can continue to reach new community members and heighten our impact on MSA awareness.
About the Multiple System Atrophy Coalition
Multiple System Atrophy is a rare condition of the nervous system that causes gradual damage to nerve cells in the brain. From our beginnings, the MSA Coalition has been devoted to improving quality of life and building hope for people affected by multiple system atrophy and their families, friends, and caregivers through:
- Providing patients and care partners with trusted and compassionate emotional support.
- Educating patients, care partners, and healthcare professionals with credible, critically important, and relevant information.
- Building a sense of community by connecting and unifying people affected by MSA.
- Funding patient-centric collaborative research aimed at alleviating symptoms, slowing disease progression, and discovering a cure.
- Playing a leading role in raising awareness and advocating for those impacted by the disease.
Improve quality of life for the multiple system atrophy community by expanding access to care and support while advancing research toward treat
Want to learn the language of MSA? Here’s a useful glossary of associated MSA terms.