The MSA Blog
The Multiple System Atrophy Coalition’s official blog. Find posts on MSA tips, caregiving, patient experience, fundraising, research updates, and more.
Read Our Latest Blog Posts
Hope in Adversity – My Mother’s Journey With MSA
By Andre Cote-Barch, MSA Coalition Care Partner Representative I will never forget the emotional call I received from my father while I was at work. My mother was diagnosed with a degenerative neurological disorder and had an undetermined life expectancy. I was only...
MSA Advice from a Physical Therapist
By: Kim Watanabe Hello, my name is Kim Watanabe and I am a 62 year old woman living in Indianapolis, IN. I was diagnosed with probable MSA-C in June of 2022 after a long diagnostic process that ultimately took me to Vanderbilt Medical Center seeing Dr. Classen and Dr....
Meet Joan, Patient Representative of the Advocacy Committee
I’m Joan Boreen Koelemay, your Advocacy Committee Patient Representative. I live in Atlanta, GA (by way of Minnesota) with my supportive husband, Jim. I’m also fortunate to have my two ‘bonus’ kids, Chuck and Kelly, living nearby. Before MSA came to stay with us, my...
Living Life as a Care Partner
By Shari Truitt "The trouble is, you think you have time." --Buddha When my husband's health challenges started, long before he received an MSA diagnosis, I started keeping a journal. The daily writing, sometimes pages, sometimes a few scribbled words or a meaningful...
Meet The MSA Coalition’s New Patient Representative, Alan Smally
By: Alan Smally, Patient Representative of The MSA Coalition Like many MSA patients I was diagnosed initially with Parkinson’s disease in 2016 after one to two years of mild symptoms. The possibility of MSA was discussed and the likelihood was thought to be low. I was...
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