The MSA Blog
The Multiple System Atrophy Coalition’s official blog. Find posts on MSA tips, caregiving, patient experience, fundraising, research updates, and more.
Read Our Latest Blog Posts
Bert’s Journey with MSA
By Dorothy O’Donnell My husband Bert of 60 years retired from central Scotland Police in 1991. He had been a police officer for 28 years and was always very active. Bert started working for himself running a successful gardening business until he handed it over to...
Preparing for the Summer Heat
By Cathy Chapman, MSA Coalition Patient Representative Summer is a welcomed season after the long winter months. With warmer weather, it is important to protect yourselves from overheating, especially on days that are hot and humid. A common symptom in MSA is heat...
New Diagnostic Criteria for Multiple System Atrophy
The MSA Coalition is excited to share that after nearly a decade of hard work, the Movement Disorder Society (MDS) Task Force on MSA Criteria Revision has reached an important milestone with its publication of the new Multiple System Atrophy (MSA) diagnostic criteria...
Navigating Clinical Trial Participation as a Care Partner for Your MSA Patient
By: William Underwood, MSA Coalition General Advisory Council There are many frustrations that come with being a care partner for an MSA patient, but the biggest one for me is how difficult it is to find compatible trials to enroll in. I am the care partner for my...
What Has Helped Through a Non-Linear MSA Case
By: Belinda Franklin There are three typical stages of Multiple System Atrophy (MSA) – Premotor (sexual and urinary dysfunction, sleep disorder, orthostatic hypotension), Possible (Parkinsonian, cerebellar features), and Probable (multidomain autonomic failure,...
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