The MSA Blog
The Multiple System Atrophy Coalition’s official blog. Find posts on MSA tips, caregiving, patient experience, fundraising, research updates, and more.
Read Our Latest Blog Post
Having MSA Does Not Define You: Reconnecting with Your Sense of Self after Diagnosis
By: Cathy Chapman, MSA Coalition Patient Representative In the beginning, MSA defined who I was... After all the doctors visits and endless testing, I was told that this is a rare disease, and there is no treatment. Then, the reality set in. I would no longer be able...
Most Recent News
The Multiple System Atrophy Coalition Announces a Groundbreaking Project to Explore the Genetics of MSA
The Multiple System Atrophy (“MSA”) Coalition announces a ground-breaking million-dollar multi-year collaborative project focused on exploring the genetics of up to 1,200 people with either a diagnosis of probable MSA, in the case of living patients, or postmortem...
More MSA Coalition Blog Posts
A Ghost of MSA Past Asks “How Are We Doing Now?”
By Larry Kellerman Ph.D., MSA Coalition Board Member While caring for my lovely wife and MSA patient, we’d have good, long conversations about the future for MSA patients and caregivers. Those discussions were so meaningful because one of us knew life would soon end...
A Fond Farewell and Thank You to Don Crouse
Join us in saying farewell to our Vice Chair of The MSA Coalition Board of Directors, Don Crouse. His tenure on our board is coming to a close at the end of this year, and we want to reflect on all he has done for our organization and the MSA community. Don joined...
The Gift of Being Present
By: Elaine Douglas In last month’s Care Partner Corner, Ashley Perera wrote about the importance of continuing the relationship with the person who has MSA. Ashley also recommended mindfulness. So, let’s dig a little deeper. At the core of both suggestions is “being...
A Gift of Encouragement
By: Cathy Chapman, MSA Coalition Patient Representative At our local grocery store, which is family owned, a soft-spoken gentleman checked us out as he has many times before. When I returned home and emptied my bag of groceries, inside, I found a 3x4 card. On this...
Meet Our Fundraising Champion Austin Urban, Organizer of Miles for MSA
Here, at The MSA Coalition, we are proud to have a community of passionate members who are dedicated to doing whatever they can to support our mission and improve the lives of patients diagnosed with Multiple System Atrophy (MSA). Because this disease is so rare,...
Recognizing Your Potential Risk of Falls
By Cathy Chapman, Patient Representative, The MSA Coalition “How many times have you fallen?” This is one of the first questions I am asked when I see my neurologist. Risk of falling is a constant concern for MSA patients as our symptoms continue to change....
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