On Thursday, July 28, the U.S. House of Representatives introduced the first-ever legislation solely devoted to ending Parkinson’s disease and atypical parkinsonism’s, including multiple system atrophy. This is a historic moment for our community! The National Plan...

By Anne Marie Foytick I am here to tell you about an incredible man and his current battle with Multiple System Atrophy (MSA). My father, Edward Sierawski, began to have symptoms just over 10 years ago. Balance was the first and most prominent symptom, which became...

By Cathy Chapman, MSA Coalition Patient Representative It is documented that fatigue is a symptom of MSA and is prevalent in the early stages while remaining persistent over time. Everyone experiences MSA symptoms differently, and fatigue is no exception. Here...

By Joanne Tubbs Kelly Decades before my husband, Alan, was diagnosed with Multiple System Atrophy, he told anyone who would listen that we treat our pets better than we treat our elders because we help them die when their suffering becomes too much to bear. In 2016,...

By Leon G. Kotze I am Leon G. Kotze, born in Usakos, Namibia, in February 1968. We are a family of three brothers and one sister, with all, even my parents, still being alive. I began playing keyboard (organ back then) at the age of seven. I went to school in...