The MSA Blog
The Multiple System Atrophy Coalition’s official blog. Find posts on MSA tips, caregiving, patient experience, fundraising, research updates, and more.
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Meet Our Fundraising Champion Austin Urban, Organizer of Miles for MSA
Here, at The MSA Coalition, we are proud to have a community of passionate members who are dedicated to doing whatever they can to support our mission and improve the lives of patients diagnosed with Multiple System Atrophy (MSA). Because this disease is so rare,...
Most Recent News
The Multiple System Atrophy Coalition Announces a Groundbreaking Project to Explore the Genetics of MSA
The Multiple System Atrophy (“MSA”) Coalition announces a ground-breaking million-dollar multi-year collaborative project focused on exploring the genetics of up to 1,200 people with either a diagnosis of probable MSA, in the case of living patients, or postmortem...
More MSA Coalition Blog Posts
The Multiple System Atrophy Coalition Delivers Another Successful Annual Patient & Family Conference to MSA Community
The Multiple System Atrophy Coalition hosted its 32nd Multiple System Atrophy Annual Patient & Family Conference on Thursday, September 30th through Saturday, October 2nd, 2021. The conference began with remarks from Dr. Wolfgang Singer and Dr. Phillip Low from...
The Multiple System Atrophy Coalition Announces a Groundbreaking Project to Explore the Genetics of MSA
The Multiple System Atrophy (“MSA”) Coalition announces a ground-breaking million-dollar multi-year collaborative project focused on exploring the genetics of up to 1,200 people with either a diagnosis of probable MSA, in the case of living patients, or postmortem...
Action Alert: Ask Congress to Protect the Orphan Drug Tax Credit
The MSA Coalition respects the views of all members of our groups. Given the relevance of the following issue to the MSA community, we are sharing this important information. Individuals are encouraged to research facts and act accordingly based on personal beliefs in...
Thankful for Another Day to Fight
By Betty Martin My name is Betty Martin. I have lived with my husband, Jerry Martin - for nearly fifty or sixty years now - in Lynnville, Tennessee. I had Parkinson’s Disease, but then I was faced with Multiple System Atrophy (MSA). I’ve had it now for about ten...
A Journey Together
By Cathy Chapman, Patient Representative, the MSA Coalition The MSA Coalition Annual Patient & Family Conference is coming up on September 30 - October 2. Reflecting back to the time I was diagnosed in 2012, I was overwhelmed by the fear of the unknown and where...
COVID Information for the Multiple System Atrophy Community
Updated 8/13/2021: In consideration of the FDA announcement regarding the third vaccine shot, MSA patients are generally not considered to be immunosuppressed. Every case is different however, and the decision to receive a booster shot should be discussed with the...
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