The MSA Blog

The Multiple System Atrophy Coalition’s official blog. Find posts on MSA tips, caregiving, patient experience, fundraising, research updates, and more.

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A Ghost of MSA Past Asks “How Are We Doing Now?”

A Ghost of MSA Past Asks “How Are We Doing Now?”

By Larry Kellerman Ph.D., MSA Coalition Board Member While caring for my lovely wife and MSA patient, we’d have good, long conversations about the future for MSA patients and caregivers. Those discussions were so meaningful because one of us knew life would soon end...

A Fond Farewell and Thank You to Don Crouse

A Fond Farewell and Thank You to Don Crouse

Join us in saying farewell to our Vice Chair of The MSA Coalition Board of Directors, Don Crouse. His tenure on our board is coming to a close at the end of this year, and we want to reflect on all he has done for our organization and the MSA community. Don joined...

The Gift of Being Present

The Gift of Being Present

By: Elaine Douglas In last month’s Care Partner Corner, Ashley Perera wrote about the importance of continuing the relationship with the person who has MSA. Ashley also recommended mindfulness. So, let’s dig a little deeper. At the core of both suggestions is “being...

A Gift of Encouragement

A Gift of Encouragement

By: Cathy Chapman, MSA Coalition Patient Representative At our local grocery store, which is family owned, a soft-spoken gentleman checked us out as he has many times before. When I returned home and emptied my bag of groceries, inside, I found a 3x4 card. On this...

Recognizing Your Potential Risk of Falls

Recognizing Your Potential Risk of Falls

By Cathy Chapman, Patient Representative, The MSA Coalition “How many times have you fallen?” This is one of the first questions I am asked when I see my neurologist. Risk of falling is a constant concern for MSA patients as our symptoms continue to change....

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