MSA Coalition Press Releases
The Latest Press Releases
The MSA Coalition Welcomes Joe Lindahl, MA, CAE as New Executive Director
The Multiple System Atrophy Coalition is pleased to introduce Joe Lindahl, MA, CAE as Executive Director. In this role, Lindahl will lead the Coalition’s professional team and work with the Board of Directors to support their mission of improving the quality of life...
The Multiple System Atrophy Coalition Delivers Another Successful Annual Patient & Family Conference to MSA Community
The Multiple System Atrophy Coalition hosted its 32nd Multiple System Atrophy Annual Patient & Family Conference on Thursday, September 30th through Saturday, October 2nd, 2021. The conference began with remarks from Dr. Wolfgang Singer and Dr. Phillip Low from...
The Multiple System Atrophy Coalition Announces a Groundbreaking Project to Explore the Genetics of MSA
The Multiple System Atrophy (“MSA”) Coalition announces a ground-breaking million-dollar multi-year collaborative project focused on exploring the genetics of up to 1,200 people with either a diagnosis of probable MSA, in the case of living patients, or postmortem...
Research Project Seed-Funded by MSA Coalition Awarded Additional Funding of 100,000 Euros from the Dr. Johannes and Hertha Tuba Foundation
The MSA Coalition is proud to announce that the research project “Abdominal Binders to Treat Orthostatic Hypotension in Multiple System Atrophy” has received additional funding. In 2020, the MSA Coalition awarded $50,000 in seed funding to investigators at the...
MSA Coalition Announces Prime Sponsorship of 2021 International Congress of Multiple System Atrophy
As part of its commitment to promote global awareness and research on multiple system atrophy, the MSA Coalition is a Prime Sponsor of the 7th International Congress of Multiple System Atrophy. The Congress will be hosted by the University of Tokyo and will be held...
MSA Coalition Welcomes Sheila Lyons as Executive Director
The Multiple System Atrophy Coalition is pleased to announce Sheila Lyons as Executive Director. Lyons will lead the professional staff and work with the MSA Coalition Board of Directors to support the Coalition’s mission to improve the quality of life and build hope...
MSA Coalition Selected for NFL’s My Cause, My Cleats Campaign
McLean, VA, December 3, 2020 The NFL is helping raise awareness of the Multiple System Atrophy Coalition as part of its annual “My Cause My Cleats” campaign. Washington Football Team player Jon Bostic has selected the MSA Coalition as his cause for this national...
The Multiple System Atrophy Coalition Awards Five New Research Grants and Surpasses $2 Million in Total MSA Research Funding
The MSA Coalition has invested $250,000 in five new research projects aimed at improving the lives of those with multiple system atrophy. McLean, VA – September 1, 2020: The Multiple System Atrophy Coalition, the leading nonprofit funder of global MSA...
Multiple System Atrophy Coalition Partners with MCI USA Association Solutions to Enhance Services, Programs and Community Relations
MCI USA Association Solutions will be providing staff and services to manage the day-to-day functions of the MSA Coalition. Spearheaded by a full-time Executive Director, key areas of responsibility for MCI USA include event planning, public relations, advocacy,...
Multiple System Atrophy Coalition Reports Record-Breaking Financial Growth
The MSA Coalition publicly announced the filing of its 2019 Form 990. The rare-disease nonprofit reports 4-fold revenue growth from just over $1 million in 2018 to $4.2 million in 2019 and continues its expansion of services and research funding to improve the quality...